As Frank Sulloway told me a few weeks ago, nothing really ever goes exactly as planned at these appointments:
Spent some time at the hospital today. About 7+ hours. We didn’t start treatment today, which was the plan, but, we did get some great news. I am a match for the immunotherapy PD1 drug. Boom! The mojo is workin’, people. Now we are waiting to see if I start with it, or with chemo, and have a few fertility things to handle. The PD1 drug treatment is a randomized deal with the clintrial. I’ll know this weekend what I start with. We are crossing fingers for the trial. But if it is indeed chemo, and it doesn’t work well, we can convert over to the immunotherapy. A bit wacky I know. But this is how it works.
Fast forward a few hours later at dinner tonight at the house, Pops and JoAnn (who sat patiently earlier today at UNC as they always do) and I heard Larry Stogner announce that he has ALS. We have been watching this dude since 1982, as long as I can remember watching tube in NC. Like many of you, his voice has been a part of our home for a long time. And he has a incurable disease. It made me sad, and also made me feel lucky. Mine is incurable too. But I’ve got more options. More treatments. And the MW gang, of course.
I truly appreciate all the MW pics, texts, calls, emails, pages, letters via carrier pigeon, smoke screens, morse code and cave drawings that came in today. Lot of folks wondering about my well being and it feels great. Stogner has a long time coin-phrase that he used tonight, and I hope that he doesn’t mind if I borrow it from him and apply it to all of you who are supporting me. “Thanks for the company”. I am beyond happy to have it.
Thank you for the years of quality local news broadcasting and best of luck to Larry Stogner. Watch his announcement here: