Review and Radiation. Kinda sounds like an R.E.M. song. Not sure why. Just does. Here’s what’s going on. I have some other stuff to post, fun things, sappy things etc, but want to get this out there for all to know.
December: was given the news, had a lung operation and a biopsy.
January – February – March: started and maintained chemo. saw some shrinkage.
April: chemo quit working. Switched over to the trial immunotherapy drug called Nivolumab. Cancer grew some during this transition.
May – June: had a few infusions of the trial drug, and it is simply not doing the job. Cancer has progressed and my left chest cavity is a bit of a mess. I’ve been in extreme pain, lost weight, and unable to get much done b/c I’ve been jacked up on Morphine.
THIS WEEK: So we made a tough decision to leave the trial and start radiation. It should give me some relief within a week or so and allow us to come up with Plan D. I have been miserable, and something has to change. I have my second radiation treatment today, it’s a short 15 minute procedure. Painless. Easy. The pics shows where they are concentrating on with the radiation.
Again, I’ve got some other stuff to post. But had to get this to all you loving folks out there inquiring! Please keep the phone calls to a minimum, I’m having a hard time talking. I’m very short of breath and it just int east to rap on the phone. More to come this week…
Sorry for a bit of a delay in my posting. Been in a bit of pain these past two weeks and have not even had my laptop open.
Feeling a bit better today, I’m sleeping better and I THINK the PD1-Nivolumab is starting to work a bit. Had second infusion of it last week. The law firm of Spivey & Bernie sat in with me, we had a good time in our own private suite. My eyes have gone way bad in the last few months and I just got some new Ray Ban scrips, so I’m sporting those whenever I’m on my phone or iPad. We had some four eyed fun while I was getting my drip, as you can see.
When the Nivolumab kicks in, I should be in a lot better shape. Why am I in pain? If you put your fore finger on your sternum with you right hand, and draw a line under your arm to the bottom of your left shoulder blade, you’ve basically covered where the mess has grown inside me. It’s hitting some nerves in my ribs in my side and back. So at times it hurts to breathe, burp, hiccup, sneeze, cough or use any muscles to do something like get up out of a chair. Managing the right amount of pain medicine has been tough, and it will all not matter once the trial drug starts doing it’s thing. My doc said it could take a few more weeks. Everyone responds differently to it. So it’s a waiting game.
Thanks again to everyone. I’ve heard from some folks this past week with some encouraging stories of defeating cancer. These are a big help for me. I mailed a bunch of MW shirts this past few weeks, big thanks to everyone for your support and purchases!