If you don’t know this term, watch the video, it’s a quick education on it’s meaning.
I’ve used this term a few times lately, its been very relevant to some situations that have surrounded my treatment and transition to Duke. I’ll give ya’ll the nutshell version and maybe you’ll understand why!
So I had a good initial meeting with Dr. Ready, the oncologist at Duke. He had me come in the following week to get some screening and preliminary stuff done before getting the trial started. And, had me go get some blood. My hemoglobin was way low. I went to UNC and got two pints. A bit of a nerving experience. But we got it done. That was on a Thursday. On Monday, I woke up to my right clavicle area swollen and very sore. Right near where my port tube meets the artery it’s connected to. I thought the transfusion had irritated it. We’ll come back to this.
Few days later, after a number of phone calls and emails, I got my appointment to get my screening done. EKG, blood work and a CT scan from top of my head to my pelvis. This turned out to be a LOOOOOOOOONG day. Most of them are in the hospital. That blood transfusion went from 11-6pm. But we got it done. EKG fine. Blood fine for the most part. CT scan not so good. Dr Ready called early Friday morning to tell me I have blood clot in my left lung and to get my tail to the hospital ASAP to get a blood thinner shot. So another day at the hospital. And it came with a kicker. I have to give myself 2 Lovenox shots EVERY day. For life. Not exactly what I was wanting to hear. But again, we got it done, and I’m handling the shots ok. Needles are only about 1/2 inch long. Goes in your belly fat (which I have very little of), kinda like a diabetes shot.
Because of the blood clot, my treatment was delayed from the 13th to the 24th. Serenity Now. Something to do with the blood thinner and the trial drugs not jiving right. This is extremely frustrating…more waiting while this cancer keeps growing in my body. I mentioned the swollen area earlier that I thought may have been an infection from the blood transfusion. Wrong. Cancer in my lymph nodes on that right side. Serenity Now. Up to this point, everything has been confined to my left side. Now it’s made it’s way to my right. Super sucks. Especily since we don’t start treatment until the
POSITIVE NOTES – Gotta keep the good MOJO energy in check, so here are some nice highlights from the last few weeks.
Fundraisers – I received a nice check from the Eddy Haneman fishing tourney. Thanks to everyone that showed up for the luncheon and to Stacy Wester and company for making this happen. It brought me to tears. An interview I did actually ended up on Time Warner Cable. We famous. Joe’s Bucket Bash – speaking of fundraisers, who’s coming? Huge event at Captain Bill’s over off Market St. Volleyball, corn hole, music, booze, auction with some great items from local shops and restaurants etc. Event is August 29th at 11am. I will be there and will be playing corn hole with my buddy JC. Bring your best. It’s GAME ON! https://www.facebook.com/joesbucketbash
Care packages – I continue to receive some great gifts from all over the country. These things certainly make me feel better and loved and I can’t thank you all enough for all the cool goodies.
General kindness – it continues to blow my mind how caring and thoughtful folks have been. Thank you. Thank you. Thank you. Thank you. Thank you. Thank you. Thank you. Thank you. Thank you. Thank you. Thank you. Thank you. Thank you.
*And yes, if things get too wacko, Serenity Now has lost is power, and I feel like I’m about to blow a gasket, I will switch over to Hoochie Mama as my new relaxation technique…